Wednesday, November 4, 2015

Russian girl born with heart outside her chest

Source Website: http://yourhealth.asiaone.com/content/russian-girl-born-heart-outside-her-chest
By The New Paper, Tuesday, 03 November 2015


Virsaviya Borun, six, was born with her heart and intestines outside her chest and abdomen.
PHOTO: Virsaviya Borun, six, was born with her heart and intestines outside her chest and abdomen.
Photo: Instagram / DariBorun
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http://www.borsamatik.com.tr/fotogaleri.aspx?Sayfa=10&photoGalleryID=1461



Her condition occurs in an estimated 5.5 times in one million live births.

Virsaviya Borun, six, was born with her heart and intestines outside her chest and abdomen.

When her mother, Ms Dari Borun, was pregnant, the doctors said the baby would not survive, Mail Online reported.

But little Virsaviya, a Russia native, has defied the odds by surviving so long. Her heart, the size of a fist, can be seen beating against her abdominal area, protected by a thin layer of skin.



Virsaviya Borun, Bathsheba
PHOTO: Virsaviya Borun, Bathsheba
SHE NEED HELP : Pray For Bathsheba
#FromRussiaWithLove 🇷🇺 for all wonderful and blessed words , thank u for your donation ❤️ for every $💖 God bless u as well🙌 y’all always will be my #TeamBathsheba💪 😍 #PrayForBathsheba 🙏
Posted by dariborun (mother) on 28 January 2015

------------☆☆------------

世上只有妈妈好 - Mom is the Best
shì shàng zhǐ yǒu mā ma hǎo

有妈的孩子像块宝 - A child with a mother is like a treasure
yǒu mā de hái zi xiàng kuài bǎo

投进妈妈的怀抱 - In the arms of mother
tóu jìn mā ma de huái bào

幸福享不了 - Boundless happiness
xìng fú xiǎng bù liǎo

------------☆☆------------

世上只有妈妈好 - Mom is the Best
shì shàng zhǐ yǒu mā ma hǎo

没妈的孩子像根草 - A child without a mother is like grass
méi mā de hái zi xiàng gēn cǎo

离开妈妈的怀抱 - To leave the mother's arms
lí kāi mā ma de huái bào

幸福哪里找 - Where to find happiness
xìng fú Nǎ lǐ zhǎo

------------☆☆------------

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http://photos-a.ak.instagram.com/hphotos-ak-xaf1/t51.2885-15/10919763_1587021998196688_1328175972_n.jpg
http://sansbonbons.com/2015/01/28/she-need-help-pray-for-bathsheba/



She has no abdominal muscles or diaphragm.

Virsaviya's condition is caused by Pentalogy of Cantrell - a rare congenital condition. The condition often requires surgery. It could be fatal if not treated.

"I like to draw Jesus, ponies and angels," the girl told NBC Miami. "I don't go to the school and I don't go to the ballet but I want to do it at home.

"My heart is right here. It's outside of my chest and I really love my mum, she's always touching my heart because she likes it."

Early this year, Ms Borun, who has been raising her daughter by herself, found a doctor in Boston who was willing to treat her daughter.



Although surgery offers a chance at survival, it is extremely risky and the child's condition will have to be closely monitored by a paediatric medical team.
PHOTO: Although surgery offers a chance at survival, it is extremely risky and the child's condition will have to be closely monitored by a paediatric medical team.
Photos: Internet, Instagram
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But the medical team there said Virsaviya cannot undergo surgery now because of high blood pressure in her pulmonary aorta.

She will be re-evaluated in two years.

They have moved from Boston to Florida because Virsaviya, who also goes by the biblical name Bathsheba, cannot cope with the cold climate.



They have moved from Boston to Florida because Virsaviya, who also goes by the biblical name Bathsheba, cannot cope with the cold climate.
PHOTO: They have moved from Boston to Florida because Virsaviya, who also goes by the biblical name Bathsheba, cannot cope with the cold climate.
Photos: Internet, Instagram 

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Said Ms Borun: "I don't have a family in the US. It's just me and Virsaviya, but now I feel like I have a family because a lot of people care about us. They want to help."

They have launched a fund-raising page on Youcaring.com called Bathsheba's Heart. So far they have raised more than US$16,000 (S$22,400) with a goal of US$20,000.

By The New Paper, Tuesday, 03 November 2015



Virsaviya 'Bathsheba' Borun Goncharova, The Girl Living With a Deadly Condition
PHOTO: VirsaviyaBathshebaBorun Goncharova, The Girl Living With a Deadly Condition
 "Virsaviya, Mother of King Solomon and wife of King David, in English: Bathsheba"
Posted by Mademoiselle Belle on Friday, 13 March 2015
http://1.bp.blogspot.com/-8DafL8VooGE/VjnbaJT9k8I/AAAAAAAAiJ8/564lEe1FYiA/s1600/1bb.JPG
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http://5thavenuebelles.blogspot.sg/2015/03/virsaviya-bathsheba-borun-girl-living.html




Reference

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